Monthly Archives

November 2014

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Cannabis oil and brain cancer- current research

Many people question whether cannabis oil can be an effective treatment option for brain cancer moving forward. Researchers are currently experimenting with different ratios of CBD/THC to examine the therapeutic effects on glioma cells in animals and human patients. In future I would like to see this explored further with additional clinical trials for lower grade tumours and radically excised malignant brain tumours.  Trials are currently underway by GW Pharmaceuticals on glioblastoma brain tumours. Please watch my video recording from ITV News and let me know what you think. In this video Dr. Wai Liu is being interviewed about his research in this area. http://youtu.be/CemX3-oGSQ4 Here is some of the research by Dr. Wai Liu and his colleagues. Dr. Liu is based at the teaching hospital where I had my craniotomy- St. George’s University of London. http://www.sgul.ac.uk/media/latest-news/study-shows-non-hallucinogenic-cannabinoids-are-effective-anti-cancer-drugs http://m.mct.aacrjournals.org/content/early/2014/11/12/1535-7163.MCT-14-0402.abstract

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Research supporting metabolic therapy as treatment for neurological disease

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2367001/ http://www.mdanderson.org/newsroom/news-releases/2012/metabolic-protein-launches-sugar-feast-that-nurtures-brain-tumors.html http://www.impactjournals.com/oncotarget/index.php?journal=oncotarget&page=article&op=view&path%5B%5D=3688 http://m.fasebj.org/cgi/content/meeting_abstract/27/1_MeetingAbstracts/863.1 http://m.fasebj.org/content/29/1_Supplement/725.22.abstract?sid=3300a1e5-62f2-4ef1-bbb3-62b2635bb54b http://www.sciencedirect.com/science/article/pii/S2213231714000925 http://www.ncbi.nlm.nih.gov/m/pubmed/25301680/ http://www.ncbi.nlm.nih.gov/m/pubmed/24598140/?i=2&from=%2F25301680%2Frelated http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0065522 http://www.ncbi.nlm.nih.gov/m/pubmed/22563484/ http://youtu.be/gONeCxtyH18 http://www.ncbi.nlm.nih.gov/m/pubmed/24615175/ http://www.ncbi.nlm.nih.gov/pubmed/24503133 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4063533/ http://cen.acs.org/articles/93/i12/Targeting-Brain-Metabolism-Offer-New.html http://www.tuitnutrition.com/2015/03/metabolic-theory-cancer-speculation120.html http://www.sciencemag.org/lookup/doi/10.1126/science.aaa1299?utm_source=twitter&utm_medium=social&utm_campaign=twitter http://highsteaks.com/science-diabetes-vs-low-carb-keto-diets/ http://www.ncbi.nlm.nih.gov/m/pubmed/20820932/ http://www.cavemandoctor.com/2015/03/07/aristotle-blood-sugar-surviving-cancer-b-c/ http://www.jackkruse.com/do-food-electrons-impart-a-quantum-effect/

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Living with disability

I was asked recently if I could write an article detailing my personal experience of a typical day living with my particular disability/illness. The picture below is hilariously appropriate for me as a young man who was once very active. In my situation illness and disability go together as I have an acquired brain injury caused by a malignant brain tumour. My tumour was discovered after a brain haemorrhage on a train on April 13, 2013 followed my multiple grand mal seizures in hospital. I would go on to receive brain surgery to remove as much tumour as possible followed by chemotherapy and radiotherapy.  Overall my ‘acquired brain injury’ is mentally and physically disabling and debilitating. I have some relatively good days where I can surprise a lot of people including myself in a big way, but also some bad days with migraines, fatigue, depression, and increased seizure activity. It can be completely random or it can be triggered by over stimulation in that part of my brain. Every now and then I will go on a run of days where I just seem a bit tired and you can barely tell I have any problems. I’m very good at hiding things on my good days so I celebrate these days and just get on with enjoying every moment as a blessing. I’m actually on a good run at the moment where I’m just tired with a few dizzy spells. Any kind of acquired brain injury is often an invisible illness so socially people can find it very difficult to understand. Every day I fight against assumptions and ignorance because I don’t ‘look’ like I have incurable cancer or any kind of disability. Even if people do understand I can often get treated like a patient and not a person….

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Seizures in my sleep- ouch, nearly

I had a seizure at about 3am in my sleep. It woke me up and I was conscious with no control this time, strange. I made a lot of yelping noises that woke my mum up and my right side was going a bit mental having a party on it’s own. I felt very dizzy and still do a bit and the let side of my head feels very hot. I think maybe it was my own fault as I’ve been staying up later.  I’m glad I know it not the tumour because I would be panicking now otherwise. I was snappy and verbally aggressive to my mum which I apologised profusely for not long after. I get like that often after seizures and it’s horrible because that’s the complete opposite of who I am. I get a lot of strong mood swings where I can get very snappy and agitated and want to be left alone. I know I just need to recover and get on with it and that’s what I plan on doing. This is my reality now, at least it’s happening at home more than it does in public. I have only had small seizures in public and people usually just think I’m drunk, rude, or a bit weird as my words get slurred, I become slow with everything I do, and I get strange sensations which are difficult to explain. Sometimes I feel as though I’m floating when out so I sit down and I get strange feelings in my face and parts of my body.  I’m not going to whinge about it now though, it’s part of my normal life and although after seizures I have a strong feeling of fragility and low self esteem, once I recover I become stronger mentally every time….

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Still exhausted, trying my best

Yesterday I finally had my MRI scan but it was different to the scans I usually have. I had an MRI spectroscopy scan which I think all brain tumour patients should have the option of having. I’m exhausted now and feel quite depressed as I keep getting dizzy spells and migraines so I’ll be lazy and share this information about MRS. It is from Wikipedia BUT I have checked it thoroughly for accuracy. It’s surprisingly quite a good description. They don’t do MRS at The Royal Marsden which is one of the main reasons I moved my treatment to Charing Cross.  Magnetic resonance spectroscopy (MRS), also known as nuclear magnetic resonance (NMR) spectroscopy, is a non-invasive, ionizing radiation free analytical technique that has been used to study metabolic changes in brain tumors, strokes, seizure disorders, Alzheimer’s disease, depression and other diseases affecting the brain. It has also been used to study the metabolism of other organs such as muscles. In the case of muscles, NMR is used to measure the intramyocellular lipid content (IMCL).

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Worried and nervous

I’m wondering if you can really tell much from CT scan results. I’ve lost count of how many pills I’ve taken today to cope and I’m feeling really unwell.  I’m not sure I can wait until Wednesday for my MRI scan because I’m feeling so light headed and I’ve got a funny taste in my mouth. I’ve been sleeping a lot today and I’m going to try and sleep again now to cope. I really don’t know what to do. 

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Very sleepy day

I’ve been asleep for most of today after suffering with vertigo alongside terrible fatigue this morning. I am now starting to feel less dizzy but I have significant heat and pain where my craniotomy scar is.  My headaches are being controlled relatively well with regular paracetamol which is encouraging. I’m still concerned however because something definitely doesn’t feel right and I’m in a lot of discomfort. I’ll just have to sit tight and wait until Wednesday! Anonymous response from another brain tumour patient about my situation with the MRI scan-  ‘Apparently only a treating consultant can order an MRI – I’ve had the same problem which is partly why I don’t live in the UK anymore. Everyone goes on about how wonderful the NHS is, but I’d be dead by now if I wasn’t so pushy. Do you have someone watching you at home? I would bombard your oncologist and neurologist’s secretary with calls monday and till they’re on it. failing that, back to a&e 🙁 – good luck.’

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Quicker MRI brain scans needed

As you can see even my hospital bed was surprised that I couldn’t get an ‘urgent’ MRI scan until Tuesday at the earliest, even if I had suffered another brain haemorrhage! The doctor I saw in A & E added to ‘keep in mind it’s also the weekend and we don’t operate MRI equipment at weekends.’ I can have as many CT scans as I like though because they are much cheaper and the NHS is trying to cut costs. I won’t name the hospital because I could tell the staff were just as frustrated as I was by it all! Kind of regretting this post as I love the NHS! It’s a massive shame though and quite sad.  Luckily I feel as though I can hang on until my routine MRI appointment on Wednesday. It will be my first scan at the brilliant Charing Cross Hospital. I’m actually looking forward to it in a bizarre way despite being anxious as a result of my recent symptoms. 

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