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Cannabinoids and brain cancer

Fascinating stuff, today has been productive. I enjoyed my visit to St. George’s University Hospital. Playing an active role in the future of cancer research as a patient is incredibly rewarding in many ways. Dr. Wai Liu has been working on some impressive research into cannabinoids for brain cancer.  More data is needed for this research and I aim to try my best to learn more and to speed up this process. I will provide more details in the near future.  We discussed at length the potential of a combination of cannabinoids alongside a well structured, restricted ketogenic diet. I gained a lot from today and Dr. Liu thought that what I am doing with my adapted ketogenic diet is very interesting. 

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Cannabinoids- clinical trials

Slightly nervous about tomorrow. I will be meeting with Dr.Wai Liu at St Georges University Hospital in the morning to discuss funding specific clinical trials into cannabis oil + a restrictive ketogenic diet for patients with glioblastoma brain tumours. It is all looking fairly promising from the correspondence I have had over the last few weeks. I find his work over the past decade very impressive and encouraging. Moving forward, this research is incredibly important for countless individuals with terminal, incurable cancer of all types however there is a growing need for more data as we progress. Recent amendments to the Psychoactive Substances Bill will allow for greater freedom for more specialised research into cannabinoids for cancer management so I believe we must strike while the iron is hot as there is currently a heightened sense of awareness for the great potential of Dr. Liu’s work. I feel a huge sense of responsibility for a lot of people, including families who are still grieving, hoping others don’t have to go through such unimaginable loss, and for others who are still fighting to manage ‘incurable’ cancer indefinitely. I have experienced loss, however I have also seen many remarkable things and met some truly extraordinary individuals.

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Today has been a fun day with food

Lots of cooking and experimenting today!  My wax worms came today. I’ll enjoy eating them tomorrow with breakfast and breeding some in the near future. They’re high in fat and great for ketogenic diets (yes, they were alive in this picture): Analysing insect nutrition is always very interesting. This is from Daniella Martin’s brilliant book ‘Edible’.  I also got some fantastic quality lamb hearts for only 73p each. Very fatty and delicious.  For lunch today I had sweetbreads. After preparing and cooking them so many times I think I’ve finally perfected it.:  For those not in the know, this is what sweetbreads are:  This food always brings my ketones up fast and stabilises blood glucose very effectively. I made a video as to why I think this might be. Here is the link: Tomorrow morning I will eat the wax worms and take pictures (might even film it). 

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So much has happened, feeling great but mentally fatigued

I’m working on a lot of things at the moment and felt like it was time for an update, otherwise it would have never been done! Recently I have done a number of interviews online which have been great for getting the message across about the potential of the ketogenic diet to manage cancer. Please note that I am very careful with my wording and that I would always say ‘manage’, never cure, even though cure is always the aim. I believe that I will need to be on this diet for the rest of my life to maintain this status quo within my body and brain to keep the cancer in ‘complete remission’ indefinitely. Here are some some things I have been working on recently: 1. My website, in which I aim to raise awareness about metabolic therapy and share research. This will have a lot of information soon! 2. My book ‘Taking Control’, which I am working on currently. The book will detail my story my individual cancer story from diagnosis to the day I complete writing. I will discuss the current research on metabolic therapy as a management strategy for brain cancer. I have realised recently that writing a good book with substance is actually quite challenging but I am determined to make it engaging, intelligent, and readable. I would like the majority of the profits from the book to go towards research into metabolic therapy. I am already working hard to make this happen. 3. I have done a few interviews recently which can be found here: 4. I have a new supplement which I have found incredibly useful- Ketoforce. I take it twice a day now as a replacement for my epilepsy medication. It also allows me to maintain therapeutic ketosis…

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At the moment I’m sitting in my room thinking about all the things I need to do but I’m doing very little about it. This is definitely a case of paralysis by analysis and certainly very out of character for me. I have just had a minor skin operation (I will discuss this more in future) and I am waiting on a number of things so I need to be patient. Everything on the outside is so calm and still yet thoughts inside my head are spinning around rapidly. This time it is predominantly with excitement so I can deal with that!  May started with me receiving my MRI results which were very positive. Rather than the usual routine I had come to expect from these meetings, we barely mentioned anything about the latest scan results because it was so clear that they were the best they could be and I had recently come off levetiracetam completely so even though there is always a doubt, I was quietly confident. My symptoms were largely resolved and I could see out of the corner of my eye that the scan showed noticeable improvement.  My oncologist seemed very interested in my unique personal approach to the ketogenic diet and asked me a lot of questions about how I thought it should be implemented. He asked me if I am working at the moment because he is very keen to have me on his team in some capacity to help other patients with the ketogenic diet in clinical settings and to further research in this area with the potential of starting clinical trials. I was delighted with this opportunity and I instantly stressed how keen I am to get started as soon as possible. I have been desperate to get back to work for a…

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MRI results- just over 2 years (Anaplastic Astrocytoma)

Fantastic MRI scan results today, the best yet. I look forward to viewing the images again on my computer. Remarkable healing thanks to my own version of the ketogenic diet after I declined more chemotherapy over a year ago.  I will continue to work on the diet, to share my ideas, and to improve it. My oncologist has offered me a job which may mean moving back to London. 🙂

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